HSE and pharma firm Vertex urged by Cystic Fibrosis Ireland to resolve pricing dispute
Cost of deal is three times annual budget usually in place for new drugs in Republic
Apporval means HSE will reimburse patients for cost of cannabis-based treatment for the first time
Debate about economic restrictions versus Covid suffering has been shirked in Ireland
Up to 1% of Co Donegal population has been estimated to have the hereditary condition
Patient’s insurer refuses to cover €40,000 cost of treatment as drug has not been approved for particular cancer
When a cure is found for Friedreich’s ataxia, will I face the long campaign to access treatment funding endured by other people with rare diseases?
HSE has agreed to reimburse Kuvan for up to 20pc of patients with rare metabolic disorder
Biogen, maker of drug to treat spinal muscular atrophy, drops price of medicine
Aidan Lyncht HSE should not be expected to pay for drugs that are not innovative
Number of indications covered by VHI initiative now 13, not three as had been thought
Move raises questions of equity between public and private patients
Consultant oncologist says inequity between public and private healthcare ‘very troubling’
Access to Medicines Ireland seeks change in R&D approach of pharmaceutical companies
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