Organ donor list: Department and charity clash over approach

Donor group says creating an opt-out-only register is a ‘huge missed opportunity’

Under new legislation, a person will be deemed not to have agreed to be a donor if they had, while alive, registered their wish not to become one. Photograph: Peter Dazeley via Getty

Under new legislation, a person will be deemed not to have agreed to be a donor if they had, while alive, registered their wish not to become one. Photograph: Peter Dazeley via Getty

 

A merged opt-in and opt-out register to consent to organ donations could sow doubts and lead to fewer donations, a Department of Health official has said, contradicting a donor advocacy group.

Department official Michael Conroy and Irish Kidney Association chief executive Mark Murphy clashed at the Oireachtas health committee over the proposed opt-out system for organ donations.

Under new legislation, a person will be deemed not to have agreed to have their organs donated on their death if they had, while alive, registered their wish not to become an organ donor.

Mr Murphy said the focus on an opt-out-only register was “a huge missed opportunity”. It was “misleading” to put an emphasis on a “soft opt-out with family consent” as it implied a change of practice, he argued.

Giving families an opportunity to be on an opt-in register would be “a useful call to action and decision aid for when their consult is sought”, ultimately increasing the number of organ donations, he said.

Mr Conroy said maintaining an opt-in and opt-out register created a problem because a large proportion of the population would not be on either register.

“It could sow a doubt and the opinion is that it could lead potentially to less donations,” he said.

Mr Murphy disagreed, saying: “It is essential to have the ‘no’ register as well as the ‘yes’ register because then you have captured the decision-makers.”

Driving licence

Ireland was in a very strong position to adopt a register given that 957,500 people had the new format driving licence where they have indicated their wish to be a donor, he said.

Mr Conroy said moving driving licence consent to an opt-in register could create “technical problems”.

He said at the end of last month 577 people were on transplant waiting lists in Ireland, 499 of whom were on the kidney transplant list. The plan is to have the new legislation enacted into law by the end of next year.

Organ Donation Transplant Ireland, the HSE-run office, anticipates that 5 per cent of the population will opt out of organ donation under the proposed legislation. The Irish Donor Network told the committee that an opt-out system in other countries is one of several factors that leads to higher donation rates.

Prof Jim Egan, director of Organ Donation Transplant Ireland, which will manage the proposed opt-out register, said there was “no magic bullet” solution to increasing donation rates.

“It is building a system like a jigsaw so you have a comprehensive approach,” he said.

Soft system

He pointed to the record in Spain, which is regarded as having the leading model with a soft opt-out system and an emphasis on making key donor co-ordinators available to support families through the donation process.

In separate testimony, the Irish Medical Organisation pointed to the crisis in the medical workforce, telling the committee that any reform of the health system was simply impossible unless understaffing was addressed.

Dr Pádraig McGarry, president of the doctors’ trade union, said reforms “without significant and appropriate investment is actually making the situation worse, not better”.

“The simple fact is that notwithstanding the spin around high levels of health spending, the budget is insufficient to meet the needs of the population and it is time for politicians and policymakers to be honest about this,” he said.

He warned that 50 per cent of public health specialists were due to retire over the next five years, when almost 700 GPs will leave the system, while the country was training “doctors for export”.