Philip Watt

22 results

Alfie Dardis, age 6, from Stepaside, and his best friend, Ava Casserly, age 6, from Dundrum at the launch of Cystic Fibrosis Ireland’s 65 roses day fundraising event. Photograph: Tom Honan

The Government needs to “get the finger out” over delays to a promised new 20-bed inpatient unit for cystic fibrosis patients at Beaumont Hospital, th(...)

Sarah O’Connell with her children Jake (3) and Hayley (7). Photograph: Dave Meehan for The Irish Times

What do you think of when you hear the word “disability”? All across Ireland, thousands suffer from conditions that can be invisible to others, such a(...)

Gillian McNulty, who is on an Orkambi trial, addresses a cystic fibrosis protest at the Dáil earlier this year. Photograph: Alan Betson

Campaigners who “never stopped fighting” have been praised as a long-awaited deal to make life-saving drugs available to up to 600 people with cystic(...)

Graffiti on Charlemont Place at the side of the Grand Canal in Dublin. The agreement between the HSE and Vertex Pharmaceuticals has been warmly welcomed. Photograph:  Nick Bradshaw

Politicians and advocacy groups have welcomed the deal between the State and the manufacturers of drugs used to treat people with cystic fibrosis (CF)(...)

Shauna McCormack with a placard featuring her two-year-old son Leon, who has cystic fibrosis, at a protest outside Leinster House, Dublin. Photograph: Gareth Chaney/Collins

Hundreds of cystic fibrosis (CF) patients demonstrated outside the Dáil on Wednesday in support of free access for CF sufferers to a groundbreaking ne(...)

Graffiti on Charlemont Place, Dublin: the Orkambi drug which improves lung function and reduces hospitalisation would cost €160,000 per patient annually at its initial price.   Photograph Nick Bradshaw

The US pharmaceutical company that manufactures Orkambi has provided €15,000 in sponsorship to Cystic Fibrosis Ireland, the charity has confirmed. In(...)

Protest in support of people with cystic fibrosis and the campaign for Orkambi drug therapy approval in Ireland at Leinster House earlier this month. Photograph: Stephen Collins/Collins Photos

Germany has become the latest country to provide free access to Orkambi, the cystic fibrosis drug that is the subject of controversial negotiations in(...)

Protest in front of Leinster House over the campaign for Orkambi drug therapy approval. Photograph: Stephen Collins/Collins

The Health Service Executive and the US makers of cystic fibrosis drug Orkambi are set to re-enter talks on the price of the product but have not agre(...)

Health Minister Simon Harris has written to counterparts in four other countries  to see if they could collaborate on achieving a cost-effective price for the CF drug. Photograph: Eric Luke/ The Irish Times

Plans by Minister for Health Simon Harris to join up with other countries in seeking price reductions for Orkambi will take years to realise, accordin(...)

A patient with cystic fibrosis. The HSE says that to date Orkambi had been ‘considered unjustifiably expensive’. File photograph: Science Photo Library

The HSE seems set to reject a “ground-breaking” but highly expensive drug for patients with cystic fibrosis in the public health system. The HSE said(...)

  • 1
  • 2
  • 3
  • Next
  • Last »