Gareth O’Callaghan won’t allow ‘cruelest diseases in world’ define who he is
Broadcaster diagnosed with neurodegenerative disorder says he isn’t afraid of ‘cowardly illness’
Gareth O’Callaghan has been diagnosed with the neurodegenerative illness Multiple System Atrophy
Broadcaster Gareth O’Callaghan who retired from radio last year after he was diagnosed with the neurodegenerative disorder Multiple System Atrophy (MSA) has said he won’t allow the condition to define who he is or what he is “still capable of achieving” in life.
In a lengthy post on Twitter, Mr O’Callaghan said that MSA is a progressive, incurable illness that neurologists and movement disorder experts view as being one of the “cruelest diseases in the world.”
“It’s been a very difficult time. Feels like I’m living my life on two levels. One is where everything has to appear normal, while the other is a complete nightmare where you’re trying to plan for all the awful stuff that lies ahead.
“I’m as strong as I think; but then while I’m not strong physically, I am - if that makes sense.
“The pain can be horrible. It’s mostly at night, but sometimes during the day you want to go home and go to bed. You get dizzy and lose your balance in the supermarket, but you dig deep.
“And you wonder as another night sets in - how long will you sleep for; and how much more can you count on your inner strength to take it all at this point; but then you say ‘bring it on!’
Mr O’Callaghan said he wasn’t afraid of the “cowardly illness.”
The radio veteran broadcast his last show on Classic Hits last year.
I've been away from here for a while. It's been a very difficult time. Feels like I'm living my life on two levels. One is where everything has to appear normal, while the other is a complete nightmare where you're trying to plan for all the awful stuff that lies ahead.— Gareth O'Callaghan (@GarethOCal) December 10, 2019
Mr O’Callaghan, who is also a clinical psychotherapist, announced his
decision to leave his role at 4FM after he was diagnosed with the
A songwriters unplugged concert in his honour occurred at Vicar Street in Dublin late last year. It involved artists such as Paul Brady, Phil Coulter, Brian Kennedy and Tommy Fleming.
The performers celebrated Mr O’Callaghan’s ’s radio career from pirate days
to his real high seas adventure with Radio Caroline which broadcasted from international waters to his time at RTÉ’s 2FM and his sojourns in the independent sector with Galway Bay FM and Classic Hits on 4FM.
This followed on from a previous fundraising gig at Cork Opera House last autumn.
In an interview on Cork’s Red FM last year Mr O’Callaghan said his life in radio
had been “a dream job.” However, radio work is stressful and any type
of pressure is like red meat to a shark with MSA, he said.
Initially symptoms of MSA resemble Parkinson’s. However, it then begins
to escalate to blood pressure, swallowing and bladder difficulties. It
targets all the areas of your body that we use involuntarily during