Agreement testament to hard work of Cystic Fibrosis Ireland and patients, says Martin

Hundreds demonstrate outside Dáil in support of free access to groundbreaking drug

US pharma Vertex in talks with HSE to reduce high price of cystic fibrosis drug

About 2,000 German patients to benefit as State continues to negotiate over price

Vertex Pharmaceuticals wants Minister Simon Harris to take a role in negotiations

Drug company calls on Simon Harris to intervene after HSE rules out use of Orkambi

Orkambi had been ‘considered unjustifiably expensive and not sufficiently cost effective’

Study finds the use of the ‘wonder drug’ would cost €21m over a five-year period

The centre will service patients from counties Tipperary, Limerick, Clare and north Kerry

Families are waiting up to two years for an appointment at State’s main genetics centre

Group for pharma firms criticises ‘artificial’ price clause protecting expensive medicines

Health authorities criticised for refusing to fund ‘game-changing’ cystic fibrosis drug

CF campaigner Orla Tinsley says decision disappointing as trials showed drug works

Price talks urged between Government and maker on €160,000 per patient medicine

Mater Hospital facility will focus on diagnosis, research and testing

65 Roses Week will hope to raise €100,000 to aid sufferers of the chronic disease

Centre will become department in Our Lady’s, Crumlin, which has Catholic ethos and whose chairman is Archbishop of Dublin

Cystic fibrosis was only identified in case of 78-year-old woman two years ago

New €6m project to design personal antibiotic prescription