‘Some of us dream of being in hospital as it would give us a break from caring’
Mother tells of difficulties she faces as a lone parent caring for her severely disabled son
Tracy McGinnis with her sons Declan and Brendan, who requires constant care
Tracy McGinnis is a mother of two boys, Declan (11) and Brendan Bjorn (15), who is profoundly disabled.
Diagnosed at one month old with congenital cytomegalovirus, which caused severe brain damage, Brendan has a myriad of health issues including “intractable epilepsy, severe cerebral palsy, unilateral deafness, intellectual disability, intestinal functioning issues, osteoporosis, scoliosis, lung disease, hip dysplasia and pressure sore issues”, his mum explains.