‘Some of us dream of being in hospital as it would give us a break from caring’

Mother tells of difficulties she faces as a lone parent caring for her severely disabled son

Tracy McGinnis with her sons Declan and Brendan, who requires constant care

Tracy McGinnis with her sons Declan and Brendan, who requires constant care

Tracy McGinnis is a mother of two boys, Declan (11) and Brendan Bjorn (15), who is profoundly disabled.

Diagnosed at one month old with congenital cytomegalovirus, which caused severe brain damage, Brendan has a myriad of health issues including “intractable epilepsy, severe cerebral palsy, unilateral deafness, intellectual disability, intestinal functioning issues, osteoporosis, scoliosis, lung disease, hip dysplasia and pressure sore issues”, his mum explains.

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