Biogen

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Workhuman co-founder and chief executive Eric Mosley: ‘We’re really just at the tip of the iceberg in terms of how we can grow the business’

Irish-founded software company Workhuman is forecasting a rise in revenues to more than $700 million (€629 million) this year, up from $500 million (€(...)

Protesters at Leinster House, Dublin in February called for the HSE to approve Spinraza for children who have spinal muscular atrophy. Photograph: Gareth Chaney/Collins

The Health Service Executive has approved Spinraza, the only treatment on the market for the rare muscle-wasting disease spinal muscular atrophy (SMA)(...)

Protesters  at Leinster House, Dublin in February called for the HSE to approve Spinraza for  children who have spinal muscular atrophy. Photograph: Gareth Chaney/Collins

The Health Service Executive drugs group has again decided against approving the only treatment on the market for the rare muscle-wasting disease spin(...)

Lauren  Whelan (15) from Loreto Crumlin in Dublin has SMA with Spinraza activists protesting outside Leinster House in Dublin in September 2018. File photograph: Garrett White/Collins Photo Agency

Health authorities in England and Wales have approved the use of the drug Spinraza, leaving Ireland, with Estonia, as the only EU states barring acces(...)

Sam Bailey from Rathcoole, Co Dublin, his father Paul, mother Fiona and sisters Kayla and Sarah, protesting  over the HSE’s decision not funding the drug Spinraza, outside the Dáil on Thursday. Photograph: James Forde

Access to medicines is always an emotive issue. If you’re a patient with a life-limiting condition, you’ll never understand why you cannot access a dr(...)

The HSE last week wrote to Biogen, the company that produces the drug, rejecting the price offer. File photograph: Getty Images

Health Service Executive claims that a drug to treat children suffering a rare muscle wasting disease would cost €600,000 per child are wrong, Fianna (...)

Opposition politicians joined families of children with spinal muscular atrophy who are seeking access to a new drug, Spinraza, in a march to Leinster House on Thursday. Photograph: Paul Cullen

Families of children with a rare muscle-wasting disease have protested outside the Dáil calling for the HSE to approve an expensive new treatment that(...)

Sam Bailey (9) has type 2 spinal muscular atrophy. Photograph: Nick Bradshaw

The mother of an eight-year-old boy with a rare fatal muscle-wasting disease has described her son’s condition as a “ticking time bomb”. Sam Bailey,(...)

Jordan Perez (11) has a rare muscle-wasting and life-limiting disease. He and his mother, Sinead, like many others, place their hope in access to Spinraza. Photograph: Ciara Wilkinson

There are no winners when it comes to a decision to withhold payment for a new drug. First there are the patients, often desperate, especially those (...)

Lauren Whelan (15), from Lorretto Crumlin who is an SMA sufferer with  Spinraza activists portesting outside the Dáil. Photograph: Garrett White/Collins

Drug company Biogen has called on the HSE to look again at the proposed pricing for the only available treatment for the rare but fatal muscle-wasting(...)

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