Biogen

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Protesters  at Leinster House, Dublin in February called for the HSE to approve Spinraza for  children who have spinal muscular atrophy. Photograph: Gareth Chaney/Collins

The Health Service Executive drugs group has again decided against approving the only treatment on the market for the rare muscle-wasting disease spin(...)

Lauren  Whelan (15) from Loreto Crumlin in Dublin has SMA with Spinraza activists protesting outside Leinster House in Dublin in September 2018. File photograph: Garrett White/Collins Photo Agency

Health authorities in England and Wales have approved the use of the drug Spinraza, leaving Ireland, with Estonia, as the only EU states barring acces(...)

Sam Bailey from Rathcoole, Co Dublin, his father Paul, mother Fiona and sisters Kayla and Sarah, protesting  over the HSE’s decision not funding the drug Spinraza, outside the Dáil on Thursday. Photograph: James Forde

Access to medicines is always an emotive issue. If you’re a patient with a life-limiting condition, you’ll never understand why you cannot access a dr(...)

The HSE last week wrote to Biogen, the company that produces the drug, rejecting the price offer. File photograph: Getty Images

Health Service Executive claims that a drug to treat children suffering a rare muscle wasting disease would cost €600,000 per child are wrong, Fianna (...)

Opposition politicians joined families of children with spinal muscular atrophy who are seeking access to a new drug, Spinraza, in a march to Leinster House on Thursday. Photograph: Paul Cullen

Families of children with a rare muscle-wasting disease have protested outside the Dáil calling for the HSE to approve an expensive new treatment that(...)

Sam Bailey (9) has type 2 spinal muscular atrophy. Photograph: Nick Bradshaw

The mother of an eight-year-old boy with a rare fatal muscle-wasting disease has described her son’s condition as a “ticking time bomb”. Sam Bailey,(...)

Jordan Perez (11) has a rare muscle-wasting and life-limiting disease. He and his mother, Sinead, like many others, place their hope in access to Spinraza. Photograph: Ciara Wilkinson

There are no winners when it comes to a decision to withhold payment for a new drug. First there are the patients, often desperate, especially those (...)

Lauren Whelan (15), from Lorretto Crumlin who is an SMA sufferer with  Spinraza activists portesting outside the Dáil. Photograph: Garrett White/Collins

Drug company Biogen has called on the HSE to look again at the proposed pricing for the only available treatment for the rare but fatal muscle-wasting(...)

British Gas-owner Centrica dropped 11.7 per cent after warning that a national price cap on energy bills would hit its 2019 results. Photograph: Reuters

European shares fell slightly, while British blue-chip shares also declined after downbeat reports from energy supplier Centrica and defence company B(...)

Perrigo is reported to be considering shelving expansion plans in Ireland after tax authorities slapped the company with a €1.6bn demand. Photograph: Adam Bird/Bloomberg

Drugmaker Perrigo is considering shelving expansion plans in Ireland after tax authorities slapped the company with a €1.6 billion demand, a person fa(...)

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