Lauren Whelan (15), from Lorretto Crumlin who is an SMA sufferer with  Spinraza activists portesting outside the Dáil. Photograph: Garrett White/Collins

Drug company Biogen has called on the HSE to look again at the proposed pricing for the only available treatment for the rare but fatal muscle-wasting(...)

Stephen, Brigetta and Nellie Lannen, who who has spinal muscular atrophy type one, a rare genetic condition.

The parents of a young child with a rare genetic condition are seeking access to a new drug they believe could save their daughter’s life. Stephen a(...)

Minister for Communications Denis Naughten warns the Government will collapse if the agreement on public sector pay and pensions fails to hold, the ‘Sunday Independent’ reports. Photograph: Dara Mac Donaill

Public sector pay features on the front of the Sunday broadsheets. The Sunday Times reports unions are planning to make a series of individual pay cla(...)

Professor Michael Barry, head of the National Centre for Pharmaeconomics, said the NCPE has a good track record in negotiations with drugs companies. Photograph: Getty Images

Minister for Health Simon Harris says he intends to discuss with his European colleagues in the coming weeks the potential to jointly purchase new dru(...)