Parents not satisfied with details of organs inquiry

Parents whose deceased children's organs were retained by hospitals without their permission, were today unhappy after viewing…

Parents whose deceased children's organs were retained by hospitals without their permission, were today unhappy after viewing an unpublished report of a Government inquiry into the scandal.

Charlotte Yeates, founder member of Parents for Justice, said the parents would have been more satisfied with the Government inquiries if they had been given more information.

Under the Freedom of Information Act, the group received a copy of the unpublished four-year Dunne Post Mortem Inquiry which was wound up by the Government in 2005 after missing several deadlines.

After the closure of the Dunne Inquiry, barrister Deirdre Madden was appointed to produce a report on the organ-retention issue which was published last January.

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The unpublished Dunne report found there was arrogance and insensitivity on the part of the medical profession in relation to the retention of children's organs but there was no evidence of malice or ulterior motive.

"Ms Dunne's recommendations are far stronger than what Dr Madden had in her report, and we are very very confused about that," Ms Yeates said. "We would have been more satisfied if we had got more information. Obviously we wanted to know exactly what happened to our children's organs."

A number of pharmaceutical companies have confirmed in recent years that they received human glands from hospitals in the 1970s and early 1980s to make growth hormones.

Ms Yeates said the parents had not yet come close to finding out exactly what happened to their children's retained organs.

"We need a public statutory inquiry and we have been asking for this for quite some time now and we have been refused by the Tanaiste and this Government," she said.

Ms Yeates said they had brought to the attention of the Tanaiste a recommendation made in both reports.

The recommendation highlighted a need for the Government to place advertisements to outline the number of organs retained in each hospital to allow parents the choice if they want to contact the hospital to find out information about the organs.

The Madden inquiry, which was published earlier this year, found there was no commercial motivation behind the retention of children's organs by hospitals.

Parents for Justice also claimed that the report did not address whether hospitals had passed on body parts other than pituitary glands to pharmaceutical companies.

Labour has called on the Government to government to "formally" publish the report "to allow full examination of its contents".

Deputy Leader of the Labour Party and Spokesperson on Health, Liz McManus, today said "Thankfully hospital practices have improved significantly since this scandal was exposed but it is essential that proper protection be provided against any possible further abuses by the introduction of legislation to give effect to the recommendations of the Dunne Report."

"There is a clearly a compelling case for the introduction of Human Tissue legislation. This Bill has been long promised by the government but there is still no sign of it. This must now be made a legislative priority when the Dail returns in September.

Tanaiste and Minister for Health, Mary Harney, was given the report last year but refused to publish it on the advice of the Attorney General.