Simon Mcgarr

23 results

DNA molecule: GMI said the  sample data gathered under the programme, following explicit consent from patients, would be deleted at the end of the rare disease programme.

Temple Street Children’s Hospital operated a project using patient DNA information for eight months before suspending it to review its compliance with(...)

Fianna Fáil said it will not accept the Public Services Card being demanded as a mandatory form of identification for access to services

Fianna Fáil will “play its part in finding a solution” to the Public Services Card controversy, but will not accept the card being demanded as a manda(...)

“We are going to consider the report and issue a full response as soon as we can,” Minister for Social Protection Regina Doherty said on Friday.  Photograph: Dara Mac Donaill

The State could face costly legal action arising from the public services card (PSC) controversy, with civil society groups saying they are considerin(...)

 Data Protection Commissioner Helen Dixon  in her Fitzwilliam Square offices. Dixon wants to extend her role into a second five-year term when her current one ends in September “to continue out the work that we have started”. Photograph: Dave Meehan

Rarely have four letters caused such dread. GDPR – the EU law designed to give people more control over their personal data in the internet age – cele(...)

Dr Johnny Ryan, speaking in a former role at The Irish Times, has filed a complaint against the Interactive Advertising Bureau Europe.

A formal complaint has been lodged with the Data Protection Commissioner (DPC) against the main European lobbyist for the online advertising industry.(...)

A report indicated that Google continues to collect revealing location-based data through users’ Android phones and via Google Maps on the iPhone. Photograph: Charles Platiau/Reuters

Where does responsibility lie – and what initiative may a national data protection authority take – when a company has potentially breached consumer p(...)

Data Protection Commissioner Helen Dixon: from Friday she will have attention-grabbing fines at her disposal. Photograph: Seán Breithaupt and Yvette Monahan/Getty Images

It has come a long way from having just 26 staff in an office next to a Centra in Portarlington but not far enough if the State’s personal-data protec(...)

In January a former civil servant who sold the personal details of hundreds of people was sentenced to two years in prison with the final year suspended. Photographer: Luke MacGregor/ Bloomberg

Government departments and other public bodies may face regulatory fines of up to €1 million for breaching people’s data protection rights after a Gov(...)

Cambridge Analytica: yet another undercover expose about data misuse. Photograph: Andy  Rain

At the core of the whole Cambridge Analytica and Facebook scandal is this: unforeseen consequences. The unforeseen consequences of developers creatin(...)

Max Schrems, who in August 2011 flagged the loophole that allowed apps installed by users of Facebook to ‘harvest’ data from their friends without their direct knowledge or explicit consent.

A loophole that led to a political data firm using unauthorised information collected from Facebook users in Donald Trump’s campaign was raised with a(...)

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