Johnny Hannon

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 Members of the Alpha-1 Action Group protesting outside the offices of the HSE in Dublin on Tuesday. Photograph:  Julien Behal

Pharmaceutical manufacturer CSL Behring has decided to extend a compassionate use programme for its Respreeza drug in the State after the company came(...)

Johnny Hannon (67) was diagnosed with a genetic condition called Alpha 1 antitrypsin deficiency which led to him developing 80pc emphysema in his late 50s. Photograph: Facebook

An emphysema sufferer from Co Cork has compared his situation to that of someone on death row as he faces the prospect of a life-changing drug being n(...)