Cystic Fibrosis  campaigner Jillian McNulty  is preparing for the  annual fundraising event, 65 Roses Day. Photograph: PA

The Covid-19 pandemic has triggered widespread fear and serious alarm among the cystic fibrosis community in the State, forcing those living with the (...)

Cystic fibrosis campaigner Jillian McNulty outside Leinster House

Jillian McNulty believes she would not be here today if it wasn’t for Orkambi. The medicine, which she accessed via a clinical trial, is a (...)

Cystic Fibrosis sufferer and campaigner Jillian McNulty with Fianna Fáil leader Micheál Martin outside the Dáil after it was announced that the HSE reached a deal on the provision of the drug Orkambi. Photograph: Brenda Fitzsimons/The Irish Times

Cystic fibrosis patients say they are hopeful powerful new drugs to treat all mutations of the disease may be developed within a few years. A delegat(...)

Shauna McCormack with a placard featuring her two-year-old son Leon, who has cystic fibrosis, at a protest outside Leinster House, Dublin. Photograph: Gareth Chaney/Collins

Hundreds of cystic fibrosis (CF) patients demonstrated outside the Dáil on Wednesday in support of free access for CF sufferers to a groundbreaking ne(...)

Graffiti on Charlemont Place at the side of the Grand Canal in Dublin. Price talks on the groundbreaking but highly expensive cystic fibrosis drug Orkambi are entering a “critical phase,” Minister for Health Simon Harris has said. Photograph: Nick Bradshaw.

Price talks on the groundbreaking but highly expensive cystic fibrosis drug Orkambi could be completed in weeks, Taoiseach Enda Kenny has said. With(...)

Protest in front of Leinster House over the campaign for Orkambi drug therapy approval. Photograph: Stephen Collins/Collins

The Health Service Executive and the US makers of cystic fibrosis drug Orkambi are set to re-enter talks on the price of the product but have not agre(...)

For new, more expensive drugs to be approved for any illness, a cut in services must be made elsewhere in the system. And that, surely, merits a substantial national debate. File photograph: Getty Images

How do you put a price on a life? In a week when melanoma cancer patients were told the State would reimburse the costs of a new immunotherapy agent(...)

Professor Michael Barry, head of the National Centre for Pharmaeconomics, said the NCPE has a good track record in negotiations with drugs companies. Photograph: Getty Images

Minister for Health Simon Harris says he intends to discuss with his European colleagues in the coming weeks the potential to jointly purchase new dru(...)