Helen Rochford Brennan said a key clause of the UN Convention on the Rights of People with Disabilities had been deferred - deliberately. File photograph: Dara Mac Dónaill/The Irish Times

“We are not lunatics” said longtime disability rights campaigner Helen Rochford Brennan who in 2012 was diagnosed with early onset Alzheimer’s disease(...)

Helen Rochford Brennan (66). Photograph: Eric Luke

Living in Tubbercurry, Co Sligo, 66-year-old Helen Rochford Brennan is only too aware of the service gaps and challenges facing patients. She was di(...)

Helen Rochford Brennan with Mary Robinson and chairman of the board of the Alzheimer Society of Ireland John Clifford at the launch of the Charter of Rights for People with Dementia. Photograph: Cyril Byrne/The Irish tImes

Driving home from Galway to Sligo one day in 2012, Helen Rochford Brennan could only think about how to tell her family she would soon forget them. A(...)

 Helen Rochford Brennan: “Aggie is one of the kindest people you’ll ever meet.” Photograph: Eric Luke

Helen Rochford Brennan was given a diagnosis of Younger Onset Alzheimer’s three years ago. She is now a leading spokeswoman on dementia who is also(...)

Helen Rochford Brennan, who was diagnosed with early-onset Alzheimer’s disease three years ago: “We can live well with it. It’s a more simplified world but then at least we are here.” Photograph; Dara Mac Dónaill

Depending on the moment, Helen Rochford Brennan’s husband calls her the “Helen that was” or the “Helen that is”, she explains, offering a glimpse of (...)