Jennifer Brea  in “Unrest”: She developed ME  following a fever that left her bedbound while studying for her PhD at Harvard. Photograph: Jason Frank

It is disconcerting being at a public event with a group of people, most of whom are suffering from an illness that they feel is misunderstood, and of(...)

A shop selling wigs and headscarves on Jiatong Street, known locally as Cancer Street, in Changsha, in Hunan province. Photograph: Clifford Coonan

In Changsha, a narrow street threads its way between the scrubby fields behind the giant grey Hunan Provincial Tumour Hospital and the equally drab Hu(...)