Cystic Fibrosis Ireland expressed concern over exclusion of the children, aged between six and 11, from treatment with the drug Kaftrio. File photograph: Getty

Cystic Fibrosis Ireland has urged the Health Service Executive and a pharmaceutical company to resolve a pricing dispute that has prevented 35 childre(...)

Paxlovid, Pfizer’s Covid-19 antiviral pill, being manufactured in Freiburg, Germany. Photograph: EPA/Pfizer

The Department of Health has defended the Government’s €90 million deal for antiviral drugs to treat Covid-19, saying any new medicines have to meet (...)

Production of Jazz Pharma’s cannabis-based epilepsy medicine Epidyolex

Ireland’s health service has agreed for the first time to reimburse a regulatory-approved cannabis-based medicine under the drugs payment scheme. Epi(...)

‘There is a clear economic cost to fighting Covid-19 with restrictions on the economy and society, and heavy borrowings to fund medical care.’ Photograph: iStock

Anybody who has lost a person close to them to an illness such as Covid-19 will know the impulsive feeling that, given the chance to turn the clock ba(...)

Amyloidosis is caused by deposits of abnormal protein – amyloid – in tissues and organs throughout the body. File photograph: Getty

A life-changing treatment for amyloidosis, a progressive, fatal disease that is disproportionately common in Ireland, is being made available through (...)

 Maria Waters: she  has been advised by three consultants that Pembro is the best course of treatment for her cancer. Photograph: Nick Bradshaw

The husband of a cancer patient has written to Irish medicines regulators urging them to act quickly on approving a drug that will treat her head and (...)

Niamh: “I am left wondering if, when a treatment is finally made available for FA, we will have to campaign for more than two years to secure funding to be able to avail of the treatment.” Photograph: Niamh Barry

I was diagnosed with Friedreich’s ataxia about 10 years ago when I was 13. FA is a progressive neuromuscular disease, for which there is currently no (...)

Families of people with phenylketonuria (PKU) have expressed their delight after the Health Service Executive agreed to fund the only drug treatment f(...)

Lauren  Whelan (15) from Loreto Crumlin in Dublin has SMA with Spinraza activists protesting outside Leinster House in Dublin in September 2018. File photograph: Garrett White/Collins Photo Agency

Health authorities in England and Wales have approved the use of the drug Spinraza, leaving Ireland, with Estonia, as the only EU states barring acces(...)

In many cases, the National Centre for Pharmacoeconomics  rules that new drugs are  not value for money at the initial price sought by the pharma company. Photograph: Alan Betson

The Government and pharmaceutical companies need to fundamentally reform the approach to setting medicine prices, a spokesman for the major drug compa(...)

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