Niamh: “I am left wondering if, when a treatment is finally made available for FA, we will have to campaign for more than two years to secure funding to be able to avail of the treatment.” Photograph: Niamh Barry

I was diagnosed with Friedreich’s ataxia about 10 years ago when I was 13. FA is a progressive neuromuscular disease, for which there is currently no (...)

Families of people with phenylketonuria (PKU) have expressed their delight after the Health Service Executive agreed to fund the only drug treatment f(...)

Lauren  Whelan (15) from Loreto Crumlin in Dublin has SMA with Spinraza activists protesting outside Leinster House in Dublin in September 2018. File photograph: Garrett White/Collins Photo Agency

Health authorities in England and Wales have approved the use of the drug Spinraza, leaving Ireland, with Estonia, as the only EU states barring acces(...)

In many cases, the National Centre for Pharmacoeconomics  rules that new drugs are  not value for money at the initial price sought by the pharma company. Photograph: Alan Betson

The Government and pharmaceutical companies need to fundamentally reform the approach to setting medicine prices, a spokesman for the major drug compa(...)

The cost to the State of replicating the move could be as high as €500 million over five years, estimates Prof Michael Barry, clinical director of the National Centre for Pharmacoeconomics. Photograph: PA Wire

It could cost the State up to €500 million to provide public patients with wider access to innovative new cancer therapies in the same way health insu(...)

VHI will provide wider access to cancer drugs, including Pembrolizumab, for stage three melanoma, and Pertuzumab (Perjeta) for patients with early stage breast cancer. Photograph: iStock

Commercial rivals to the VHI say they have no plans to follow the semi-State health insurer’s lead by providing wider access to cancer drugs for some (...)

The drugs VHI has committed to providing wider access to include Pembrolizumab, for stage three melanoma, and Pertuzumab (Perjeta) for patients with early stage breast cancer.  Photograph: Istock

Access to new cancer drugs for some private patients, which are unavailable in the public system, has been described as “incredibly unfair” by the Iri(...)

Liberian nurses carry the body of an Ebola victim in 2014. Vaccines were not available to victims of the epidemic, lobby group Access to Medicines Ireland says. Photograph: Ahmed Jallanzo/EPA

Spiralling drug costs threaten to bankrupt healthcare systems and deny patients access to essential medicines, according to lobby group Access to Medi(...)

Ireland is, with France, the slowest of the wealthy western European states to approve payment for new medicines, according to a new survey by the industry.

Ireland is, with France, the slowest of the wealthy western European states to approve payment for new medicines, according to a new survey by the ind(...)

Drugs developed  by major pharma companies, including Pfizer, Amgen, AstraZeneca and Johnson & Johnson’s Actellion business, are among those that have now secured approval. File photo. Photograph: Simon Dawson/Bloomberg

Ten new medicines approved for use by the Health Service Executive last week have been waiting for more than two years on average for sanction, accord(...)

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