Irish patients with severe lung disease have had their access to a “life-changing” drug extended to the middle of next year after the manufacturer agr(...)

Members of the Alpha-1 Action Group protesting outside the offices of the HSE in Dublin earlier this year. Photograph: Julien Behal

Irish patients with severe lung disease are hoping to have their access to a “life-changing” drug extended. The manufacturer of Respreeza, CSL Behrin(...)

Some of the patients, who have genetic emphysema, have been on  Respreeza for up to a decade.

More than 20 Irish patients with severe lung disease are facing an uncertain future as their access to a “life-changing” drug ends this week. Some of(...)

More than 20 Irish patients with severe lung disease are to lose access to a “life-changing” drug within weeks after the manufacturer decided to end a(...)

Respreeza is being  provided through a compassionate-use programme. File photograph: Getty Images

More than 20 Irish patients with severe lung disease are facing the removal of a “life-changing” drug within weeks following its rejection by the HSE (...)

3D illustration of lungs

More than 20 Irish patients with severe lung disease have been told they can stay on a “life-changing” treatment for another month while talks continu(...)

Jane Keenan: “I inherited two bad genes from my parents”

Thousands of Irish people carry a gene that increases the risk of developing severe lung disease but many do not know it. Alpha 1 antitrypsin defici(...)

One in 25 Irish people are at risk of developing chronic obstructive pulmonary disease (COPD) due to a combination of inherited genes and exposure to (...)