Lauren  Whelan (15) from Loreto Crumlin in Dublin has SMA with Spinraza activists protesting outside Leinster House in Dublin in September 2018. File photograph: Garrett White/Collins Photo Agency

Health authorities in England and Wales have approved the use of the drug Spinraza, leaving Ireland, with Estonia, as the only EU states barring acces(...)

Jordan Perez (11) has a rare muscle-wasting and life-limiting disease. He and his mother, Sinead, like many others, place their hope in access to Spinraza. Photograph: Ciara Wilkinson

There are no winners when it comes to a decision to withhold payment for a new drug. First there are the patients, often desperate, especially those (...)

Pharmaceutical companies have rejected allegations that they are pursuing “predatory pricing” for new medicines. Photograph:  Getty Images

Pharmaceutical companies have rejected allegations that they are pursuing “predatory pricing” for new medicines. The Irish Pharmaceutical Healthcare (...)