Spinraza

5 results

Take-up of biosimilars in the Irish health system has been held back by the lack of Government encouragement and inertia among medical practitioners. Photograph: Benis Arapovic/Getty

Efforts to pull together a national policy on biosimilars remain stymied somewhere in the Department of Health but at least some moves are finally bei(...)

Lauren  Whelan (15) from Loreto Crumlin in Dublin has SMA with Spinraza activists protesting outside Leinster House in Dublin in September 2018. File photograph: Garrett White/Collins Photo Agency

Health authorities in England and Wales have approved the use of the drug Spinraza, leaving Ireland, with Estonia, as the only EU states barring acces(...)

Jordan Perez (11) has a rare muscle-wasting and life-limiting disease. He and his mother, Sinead, like many others, place their hope in access to Spinraza. Photograph: Ciara Wilkinson

There are no winners when it comes to a decision to withhold payment for a new drug. First there are the patients, often desperate, especially those (...)

Pharmaceutical companies have rejected allegations that they are pursuing “predatory pricing” for new medicines. Photograph:  Getty Images

Pharmaceutical companies have rejected allegations that they are pursuing “predatory pricing” for new medicines. The Irish Pharmaceutical Healthcare (...)

Lauren Whelan (15), from Lorretto Crumlin who is an SMA sufferer with  Spinraza activists portesting outside the Dáil. Photograph: Garrett White/Collins

Drug company Biogen has called on the HSE to look again at the proposed pricing for the only available treatment for the rare but fatal muscle-wasting(...)