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Graffiti on Charlemont Place, Dublin: the Orkambi drug which improves lung function and reduces hospitalisation would cost €160,000 per patient annually at its initial price.   Photograph Nick Bradshaw

The US pharmaceutical company that manufactures Orkambi has provided €15,000 in sponsorship to Cystic Fibrosis Ireland, the charity has confirmed. In(...)

Orkambi graffiti on Charlemont Place at the side of the Grand Canal in Dublin. Photograph: Nick Bradshaw/The Irish Times

Negotiations over a potentially life-saving drug for cystic fibrosis patients are ongoing according to the Minister for Health, who expects an update (...)

Protest in support of people with cystic fibrosis and the campaign for Orkambi drug therapy approval in Ireland at Leinster House earlier this month. Photograph: Stephen Collins/Collins Photos

Germany has become the latest country to provide free access to Orkambi, the cystic fibrosis drug that is the subject of controversial negotiations in(...)

 Orkambi graffiti on Charlemont Place Dublin: under initial proposal the drug would cost €160,000 per patient annually.  Photograph Nick Bradshaw

Senior health officials have said they are not optimistic about reaching agreement at talks on the price of the cystic fibrosis drug Orkambi. Last-di(...)

Protesters outside Leinster House calling for Orkambi to be provided to people with cystic fibrosis. Photograph: Collins

Many new drugs have become available to patients in the last decade. The majority of them are “biologicals”, drugs resembling complex natural molecule(...)

Minister for Health Simon Harris said it is  time for the spinning to stop and the talking to start, in the best interests of patients. Photograph: Dara Mac Dónaill

Minister for Health Simon Harris has told the US pharma company that makes Orkambi to “stop spinning” and get back into negotiations on a price for th(...)

Taoiseach Enda Kenny: he has urged Vertex Pharmaceuticals to return to intensive discussions to reduce the price for those who would benefit from the drug Orkambi

The charge being forwarded by the company producing Orkambi is “grossly excessive’’, Taoiseach Enda Kenny has said. The US firm Vertex Pharmaceutic(...)

Protest in front of Leinster House over the campaign for Orkambi drug therapy approval. Photograph: Stephen Collins/Collins

The Health Service Executive and the US makers of cystic fibrosis drug Orkambi are set to re-enter talks on the price of the product but have not agre(...)

Health Minister Simon Harris has written to counterparts in four other countries  to see if they could collaborate on achieving a cost-effective price for the CF drug. Photograph: Eric Luke/ The Irish Times

Plans by Minister for Health Simon Harris to join up with other countries in seeking price reductions for Orkambi will take years to realise, accordin(...)

A patient with cystic fibrosis. The HSE says that to date Orkambi had been ‘considered unjustifiably expensive’. File photograph: Science Photo Library

The HSE seems set to reject a “ground-breaking” but highly expensive drug for patients with cystic fibrosis in the public health system. The HSE said(...)

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