Vertex

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Gillian McNulty, who is on an Orkambi trial, addresses a cystic fibrosis protest at the Dáil earlier this year. Photograph: Alan Betson

Campaigners who “never stopped fighting” have been praised as a long-awaited deal to make life-saving drugs available to up to 600 people with cystic(...)

Orkambi graffiti  in Dublin: the Government was never going to risk the  political protests that would ensue if Orkambi were rejected. Photograph: Nick Bradshaw

The Government’s decision to fund a package of groundbreaking new drugs to treat up to 600 cystic fibrosis patients will be widely welcomed, but it ra(...)

Graffiti on Charlemont Place at the side of the Grand Canal in Dublin. The agreement between the HSE and Vertex Pharmaceuticals has been warmly welcomed. Photograph:  Nick Bradshaw

Politicians and advocacy groups have welcomed the deal between the State and the manufacturers of drugs used to treat people with cystic fibrosis (CF)(...)

 A mural on Charlemont Place, Dublin. This week’s talks represent a final chance to secure agreement on Orkambi. Photograph Nick Bradshaw

The Health Service Executive has called in the makers of Orkambi for last-ditch talks on approving the groundbreaking cystic fibrosis (CF) drug for ov(...)

A trader works on the floor of the New York Stock Exchange. Gains in energy and consumer discretionary stocks propped up the S&P 500 and the Nasdaq on Wednesday. Photograph: Brendan McDermid/Reuters

Global stocks edged up on Wednesday on the day UK prime minister Theresa May formally began her country’s divorce from the European Union, a decision (...)

Students from Santa Sabina Sutton support fellow student Ruth Nolan, who has Cystic Fibrosis, by attending the  Orkambi protest outside the Dáil earlier this month. Photograph: Alan Betson

The US manufacturers of Orkambi have expressed frustration at delays in reaching agreement with the HSE on approving the cystic fibrosis drug for Iri(...)

Shauna McCormack with a placard featuring her two-year-old son Leon, who has cystic fibrosis, at a protest outside Leinster House, Dublin. Photograph: Gareth Chaney/Collins

Hundreds of cystic fibrosis (CF) patients demonstrated outside the Dáil on Wednesday in support of free access for CF sufferers to a groundbreaking ne(...)

Graffiti on Charlemont Place at the side of the Grand Canal in Dublin. Price talks on the groundbreaking but highly expensive cystic fibrosis drug Orkambi are entering a “critical phase,” Minister for Health Simon Harris has said. Photograph: Nick Bradshaw.

Price talks on the groundbreaking but highly expensive cystic fibrosis drug Orkambi could be completed in weeks, Taoiseach Enda Kenny has said. With(...)

CF Ireland says damage is being done to children with cystic fibrosis by the failure to authorise Kalydeco for  those aged two to five years

New evidence has emerged to support the case for approving the groundbreaking cystic fibrosis drug Orkambi, Minister for Health Simon Harris has been (...)

A mural on Charlemont Place in Dublin. Authorities in Ireland, the UK and several other European countries have balked at CF drug Orkambi’s high price. Photograph: Nick Bradshaw

The Health Service Executive and the makers of Orkambi have failed to reach agreement in price talks on the groundbreaking but highly expensive cysti(...)

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