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Students from Santa Sabina Sutton support fellow student Ruth Nolan, who has Cystic Fibrosis, by attending the  Orkambi protest outside the Dáil earlier this month. Photograph: Alan Betson

The US manufacturers of Orkambi have expressed frustration at delays in reaching agreement with the HSE on approving the cystic fibrosis drug for Iri(...)

Shauna McCormack with a placard featuring her two-year-old son Leon, who has cystic fibrosis, at a protest outside Leinster House, Dublin. Photograph: Gareth Chaney/Collins

Hundreds of cystic fibrosis (CF) patients demonstrated outside the Dáil on Wednesday in support of free access for CF sufferers to a groundbreaking ne(...)