Mother had to fundraise to get palliative care for her dying six-year-old daughter
Mother of child who needs 24-hour care says she feels ‘let down by the system’
The mother of a six-year-old girl, who is approaching the end of her life, had to set up a GoFundMe page to fund her daughter’s 24-hour palliative care needs.
Daisy McDonald has Rett syndrome, which is a genetic neurological condition. She was discharged from hospital 13 days ago with an expected 24 hours to live and transported to her home in Templeogue, Dublin from Tallaght hospital via a Garda-escorted Bumbleance. Her mother, Lynn McDonald, was distressed to discover the HSE did not provide the care she believed would be in place.