Life as a carer: ‘If something happens to me, what will happen to my girls?’

Lynn McDonald on the relentless challenges when your child has a life-limiting condition

Daisy, who is six, and Ellie, who is 11: ‘A lot of siblings struggle because without anyone’s intention, they have to come second,’ says Lynn, their mother. ‘It kills me saying that because I love both my girls equally’

Daisy, who is six, and Ellie, who is 11: ‘A lot of siblings struggle because without anyone’s intention, they have to come second,’ says Lynn, their mother. ‘It kills me saying that because I love both my girls equally’

“The siblings are always forgotten,” says Lynn McDonald, referring to her daughter Ellie, who is 11, as we discuss Lynn’s role as carer for youngest daughter, Daisy, who is six.

Daisy has Rett syndrome, a genetic neurological condition that’s “like a combination of Parkinson’s, epilepsy, autism and cerebral palsy all rolled into one”, Lynn explains. “She has no voice and unfortunately no movement either.

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