‘I miss my own voice’ – living with Motor Neuron Disease

Voice of those being cared for: At 56, teacher Patricia Sweeney was diagnosed with MND

Patricia and Eugene Sweeney who in spite of all the difficulties they now encounter show incredible positivity

Patricia and Eugene Sweeney who in spite of all the difficulties they now encounter show incredible positivity

As the crisis for community care continues, we have heard many valiant stories of those who dedicate their lives to caring for loved ones. The 2016 census revealed the number providing regular unpaid help for a friend or family member increased by 4.4 per cent, standing at 195,263.

But what does it feel like to be the one whose everyday needs are in the hands of others, and to watch your loved ones struggle with the burden?

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